When we were very young....

When we were very young....

This is Mia's story, and it is shared with her full knowledge and permission.  At the age of 35, Mia finally received a diagnosis of Monosomy 1p36 Deletion Syndrome - with the accompanying advice to Google it! We hope by chronicling her journey with its many challenges and achievements we can help build on the available knowledge and understanding of 1p36 for our fellow travellers and the broader community.

Friday, January 6, 2017/Author: Jacqui/Number of views (147)/Comments (0)/
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Copyright 2017 - Jacqui Suares